Cerebral Palsy Blog An insight into the life of a parent raising a child with cerebral palsy

The Commission on Human Medicines (CHM) has just released advice following a comprehensive review that was conducted by the Medicines and Healthcare products Regulatory Agency (the UK’s equivalent to the FDA) on Cough and Cold Remedies for Children.
The review was conducted to assess the benefits and potential risks of over-the-counter (OTC) cough and cold remedies [...]

Around the beginning of 2007, we were very fortunate to get a standing frame for Ella. Made by a specialist company called Leckey, we’ve gradually been able to introduce Ella to the feeling of being upright and secure, whilst encouraging her to begin exploring the use of her arms in a more controlled manner.

Ella has [...]

The Independent, 30th June 2007By Jeremy Laurance, Health Editor
Sorrow and pity are natural responses to disability in children – but they are misplaced, researchers say.
There is no need to feel sad about youngsters with cerebral palsy because they experience life much as other children do – with all its joys and sadnesses, successes and failures.
Able-bodied [...]

Welcome to Amelia Taylor.
Some of you may have seen this in the news over the past couple of days …
Amelia is thought to be the world’s first surviving sub-22 week micro preemie. She was delivered on October 24th 2006 by Caeserian section at an astonishing 21 weeks and six days, weighing just 260 grams and [...]

It’s that time of year …
The kids have had a bad run the past couple of weeks with yet more chest infections and colds. The problem is always amplified by their chronic lung disease from being intubated for so long in NICU. A new born baby is defined as having chronic lung disease if they [...]

Happy New Year!
Okay, I’ve been slack! Motivation hit an all time low and I apologise for not updating for so long.
I hadn’t realised this blog had gained as many readers as it has in such a short space of time. To be honest, I didn’t know what to expect when I first started this blog [...]

It’s 4 weeks since I last posted. The reason being it has been pure hell at home. Ella and her brother have been very ill with throat infections, thrush and raging temperatures. Unfortunately, Max had to miss his herniotomy operation at Great Ormond Street because of a 39.5oC temperature.
However, this post is about the nightmare [...]

Some of my first thoughts were:
How severe will it be?Is Ella going to be diplegic, hemiplegic, quadraplegic?How will she cope?How will we cope (both together and with Ella)?What happens to her when we’re gone (not too soon hopefully!)
Some thoughts were purely selfish; we’re only human. Some thoughts were misdirected rage, looking for someone or something [...]

For any parent, finding out that your baby or child has cerebral palsy is nothing short of devastating. It’s hard to describe the emotional turmoil you begin to go through when you hear those two words confirmed for the first time. It conjours up all sorts of terrifying thoughts, and some of these I will [...]