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Category: General Ramblings

Children with disabilities ‘As happy as classmates’

Children with disabilities ‘As happy as classmates’

The Independent, 30th June 2007 By Jeremy Laurance, Health Editor Sorrow and pity are natural responses to disability in children – but they are misplaced, researchers say. There is no need to feel sad about youngsters with cerebral palsy because they experience life much as other children do – with all its joys and sadnesses, [...]

World’s First Surviving 22 Week Micro Preemie

World’s First Surviving 22 Week Micro Preemie

Amelia Taylor was born at just 22 weeks … read on to see just how small.

Colds, RSV and Sleep

Colds, RSV and Sleep

It’s that time of year … The kids have had a bad run the past couple of weeks with yet more chest infections and colds. The problem is always amplified by their chronic lung disease from being intubated for so long in NICU. A new born baby is defined as having chronic lung disease if [...]

New Year … New Start

New Year … New Start

Happy New Year! Okay, I’ve been slack! Motivation hit an all time low and I apologise for not updating for so long. I hadn’t realised this blog had gained as many readers as it has in such a short space of time. To be honest, I didn’t know what to expect when I first started [...]

Cerebral Palsy and Constipation

Cerebral Palsy and Constipation

It’s 4 weeks since I last posted. The reason being it has been pure hell at home. Ella and her brother have been very ill with throat infections, thrush and raging temperatures. Unfortunately, Max had to miss his herniotomy operation at Great Ormond Street because of a 39.5oC temperature. However, this post is about the [...]

Thoughts

Thoughts

Some of my first thoughts were: How severe will it be?Is Ella going to be diplegic, hemiplegic, quadraplegic?How will she cope?How will we cope (both together and with Ella)?What happens to her when we’re gone (not too soon hopefully!) Some thoughts were purely selfish; we’re only human. Some thoughts were misdirected rage, looking for someone [...]

Welcome

Welcome

For any parent, finding out that your baby or child has cerebral palsy is nothing short of devastating. It’s hard to describe the emotional turmoil you begin to go through when you hear those two words confirmed for the first time. It conjours up all sorts of terrifying thoughts, and some of these I will [...]