Comments on: Colds, RSV and Sleep https://www.cerebralpalsyblog.co.uk/2007/02/colds-rsv-and-sleep/ An insight into the life of a parent raising a child with cerebral palsy Tue, 02 Nov 2010 00:34:12 +0000 hourly 1 http://wordpress.org/?v=3.4.2 By: LK https://www.cerebralpalsyblog.co.uk/2007/02/colds-rsv-and-sleep/comment-page-1/#comment-5308 LK Sun, 15 Aug 2010 23:17:00 +0000 http://www.cerebralpalsyblog.co.uk/blog/?p=7#comment-5308 RSV almost killed my full-term baby at 6 weeks old. Both the father and me were so run down after birth and bring the baby home .My husband is the one who brought the RSV home to us. First it was him, then it was me, and because I was taking care of the newborn 24/7, I gave it to him. It was the most terrifying moment of our life. He had retractions, severe RSV where he was in the hospital on oxygen and IV for a week. He didn't get better until day 7!!! The @#$# pediarician and ER didn't take it seriously because he wasn't a preemee. We seriously need to educate doctors/ER staff that ANY BABY who is UNDER 6 MONTHS OLD PREEMEE OR NOT, RSV CAN KILL. I will never, ever forget those moments or that week with our baby. Since then a cold goes right to his lungs and he has been diagnosed with virally-induced asthma. A cold goes right to his lungs and he requires the same treatment as a severe asthmatic. I constantly worry when he's sick with lung issues/bronchiolitis that he is going to die. Take RSV seriously no matter if the baby/child is preemie or not. It can save your child's life. Demand answers, treatement, and don't listen to "protocol" of preemie or not. Every child matters. RSV almost killed my full-term baby at 6 weeks old. Both the father and me were so run down after birth and bring the baby home .My husband is the one who brought the RSV home to us. First it was him, then it was me, and because I was taking care of the newborn 24/7, I gave it to him. It was the most terrifying moment of our life. He had retractions, severe RSV where he was in the hospital on oxygen and IV for a week. He didn’t get better until day 7!!! The @#$# pediarician and ER didn’t take it seriously because he wasn’t a preemee. We seriously need to educate doctors/ER staff that ANY BABY who is UNDER 6 MONTHS OLD PREEMEE OR NOT, RSV CAN KILL. I will never, ever forget those moments or that week with our baby. Since then a cold goes right to his lungs and he has been diagnosed with virally-induced asthma. A cold goes right to his lungs and he requires the same treatment as a severe asthmatic. I constantly worry when he’s sick with lung issues/bronchiolitis that he is going to die.

Take RSV seriously no matter if the baby/child is preemie or not. It can save your child’s life. Demand answers, treatement, and don’t listen to “protocol” of preemie or not. Every child matters.

]]> By: SRJanit0r https://www.cerebralpalsyblog.co.uk/2007/02/colds-rsv-and-sleep/comment-page-1/#comment-27 SRJanit0r Wed, 31 Dec 2008 00:24:00 +0000 http://www.cerebralpalsyblog.co.uk/blog/?p=7#comment-27 Best wishes to all of you :) Best wishes to all of you :)

]]> By: SRJanit0r https://www.cerebralpalsyblog.co.uk/2007/02/colds-rsv-and-sleep/comment-page-1/#comment-26 SRJanit0r Wed, 31 Dec 2008 00:23:00 +0000 http://www.cerebralpalsyblog.co.uk/blog/?p=7#comment-26 I have twin girls that were born @ 25 weeks. They are 4 now. One with pretty severe CP and hydrocephalus in 2 ventricles and one who was just a little under a pound at birth who is less disabled with no hydrocephalus. I totally get what you are saying. It is difficult negotiating the obstacles of parenting children with disabilities. You have my utter most respect. Keep up the good fight. They will grow to be strong and healthy I have twin girls that were born @ 25 weeks. They are 4 now. One with pretty severe CP and hydrocephalus in 2 ventricles and one who was just a little under a pound at birth who is less disabled with no hydrocephalus. I totally get what you are saying. It is difficult negotiating the obstacles of parenting children with disabilities. You have my utter most respect. Keep up the good fight. They will grow to be strong and healthy

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